May 4-7, 2019 is Cleft Lip and Palate Awareness Week. There are so many misconceptions about individuals born with cleft lip and/or palate and this week is to help those who do not have knowledge of this particular medical issue to understand a little better what all is affected by cleft lip and palate. When we began this
National Cleft and Craniofacial Awareness
National Cleft and Craniofacial Awareness
When Hudsyn was born and I was forced to learn about clefts - something I knew nothing about - I was amazed at how little is known nationwide. I attribute a large part of this to the fact that in the United States we "fix it" and then move on and don’t talk about it. In many other
Huddy Update
Huddy Update
Hudsyn saw the audiologist again today for a hearing test and even though she cooperated better this time, the results were pretty similar to last time. The audiologist had another one help her this time in hopes of a better, more reliable test. Poor Huddy had the hiccups the whole time she was in the testing/sound proof room
PTL For No Fluid!
PTL For No Fluid!
We were supposed to see Mary, the PA at Hudsyn’s ENT last Thursday. We planned to leave Wednesday evening but with the bad/icy weather in the city we weren’t able to. So, we were able to re-schedule for today. We went to Wichita this weekend so we just stayed an extra night at Isaac’s sister’s house and then
Another Checkup
Another Checkup
Hudsyn’s check-up with Mary (the ENT PA) was quick and pretty easy today. There is still evidence of drainage in her left ear so we will try a different antibiotic and continue using the drops in hopes of drying/clearing it up completely . She did NOT appreciate having the drainage sucked out of her ear - and she
4 Month Check-up
4 Month Check-up
We saw Dr. Smith, Hudsyn’s surgeon this morning. He said she looks good but definitely has a fistula near the front of her Palate. A fistula is defined as “an abnormal or surgically made passage between a hollow or tubular organ and the the body surface or between two hollow or tubular organs.” We knew she had a
No More Blocked Tube
No More Blocked Tube
We saw the PA, Mary, at Pediatric ENT of Oklahoma today to follow up on Hudsyn’s ear troubles. My dad (Hoot), Hudsyn, and I drove to OKC last night after work and when we got to our room we noticed Huddy had a fever. I gave her some Tylenol and she slept well but when she got up
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